Spinal Muscular Atrophy (SMA) Parent Education

The following lectures were presented at past SMA Family Education Days held at the University of Wisconsin. The lectures cover a variety of topics to help families better understand various aspects of Spinal Muscular Atrophy (SMA). The lectures were presented to an in-person audience and live over the internet, allowing parents to interact with and ask questions of care givers and medical experts. The lectures are offered here in an archived format.

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SMA Video Archive

National Perspective on SMA

Kenneth Hobby

Communication Aids

Bobbi Johnson, Mary Locast, Blair Panhorst

Tips and Tricks for Community Activities and Travel

Parent Panel

What Happens in the ER?

Joshua Ross, MD

Respiratory Therapy: Helpful Information for Parents and Caregivers

Rhonda Yngsdal-Krenz, RRT, MBA and Justine Ropp, RRT

Handling Hospitalizations: What to Expect and Tips for Parents and Caregivers

Craig Becker, LCSW; Rhonda Yngsdal-Krenz, RRT, MBA; and Katie Poole

Bracing for Function

Karen Patterson, PT and Dana Janiak-Couture, OT

What Happens When You Call 911

Stu McVicar, RRT

What to Expect: ED/PICU

Benson Hsu, MD

Breathing Basics in SMA

Mary Schroth, MD

Navigating Your Child's Course of Therapy for Best Outcomes

Karen Patterson, PT, MS, PCS and Krista Kienitz, OTR

Nutrition Issues in SMA

Mary Marcus, MS, RD