Cystic Fibrosis Parent Education
2011 North American Cystic Fibrosis Conference
The following webinar lectures are for families and persons who are affected by cystic fibrosis. The webinar consists of presentations given by health care providers from the UW Cystic Fibrosis Center who attended the North American Cystic Fibrosis Conference 2011. Information is shared about recent advances in care, directions of research and knowledge about caring for persons with CF. We hope that this webinar assists families and patients to become more confident users of the health care system and be better able to partner with and interact with their health care team.
Introduction and Overview
Mary Marcus, MS, RD, Pediatric Clinical Nutritionist
Deb Silvis, BS, Family Outreach Specialist
Bone Health and Vitamin D
Erin Seffrood, MS, RD, CSP, Pediatric Clinical Nutritionist
Update on VX-770 and Other Drugs in Development
Michael Rock, MD, UW Cystic Fibrosis Center
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Pulmonary Exacerbations
D.B. Sanders, MD, Assistant Professor of Pediatrics
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Early Nutrition and Health Status Later in Life
Mary Marcus, MS, RD, Pediatric Clinical Nutritionist
New Experiences in Clinic - Why Do We What We Do?
Darci Pfeil, APNP, Pediatric Nurse Practitioner
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Parent Perspective
Deb Silvis, BS, Family Outreach Specialist
2009 North American Cystic Fibrosis Conference
The following lectures were presented as part of a Cystic Fibrosis Parent Education webcast sponsored by the University of Wisconsin Cystic Fibrosis Center and the UW PPC held on 12/9/09. The lectures cover a variety of topics related to recent research and treatment developments presented at the 2009 North American Cystic Fibrosis Conference (NACFC). The lectures were presented live over the internet, allowing parents to interact with and ask questions of presenters. The lectures are offered here in an archived format.
Updates in Cystic Fibrosis Related Diabetes
Erin Seffrood, MS, RD, CSP, Pediatric Clinical Nutritionist
Optimizing Nutritional Status
Erin Seffrood, MS, RD, CSP, Pediatric Clinical Nutritionist
Updates in Vitamin D Research
Erin Seffrood, MS, RD, CSP, Pediatric Clinical Nutritionist
Pulmonary Exacerbations
D.B. Sanders, MD, Assistant Professor of Pediatrics
Parent Perspective
Deb Silvis, BS, Family Outreach Specialist